In today's episode, we're diving into the world of adult congenital heart disease, or ACHD, a field that's growing as more and more children with congenital heart defects are surviving and thriving into adulthood. But living with a heart that was structurally different from birth brings lifelong considerations. And not all adult cardiology teams are equipped to manage these unique patients.
To help us understand this specialized area of care, I'm joined by Karina Manayan, nurse practitioner with the Adult Congenital Heart Disease Program at UCSF Health. Karina works at the intersection of two worlds, guiding patients as they transition from pediatric cardiology into adult specialty care and helping them navigate everything from pregnancy to pacemakers with compassion and clinical precision. We'll talk about how congenital heart disease differs from acquired heart disease, what adult congenital patients need that's often overlooked, and why building lifelong care models matter, not just for survival, but for quality of life.
Karina Manayan, MSN, APRN, FNP-BC: https://www.ucsfhealth.org/providers/karina-berge
UCSF Health Adult Congenital Heart Disease Clinic: https://www.ucsfhealth.org/clinics/adult-congenital-heart-disease-clinic
2:07: San Diego State University School of Nursing: https://nursing.sdsu.edu/
2:21: UCLA School of Nursing: https://nursing.ucla.edu/
3:52: Dr. Mohan Reddy: https://www.ucsfbenioffchildrens.org/providers/v-mohan-reddy
8:47: Adult Congenital Heart Disease or ACHD
9:03: Congenital heart defects:
10:26: Cardiopulmonary Bypass-Teach Me Surgery
Cardiopulmonary Bypass-Cleveland Clinic
11:05: Stanford ACHD Clinic
11:24: Atrial Septal Defect:
11:25: Single ventricle: American Heart Association
11:40: Tetralogy of Fallot: American Heart Association
11:57: Ventricular Septal Defect: American Heart Association
13:17: Coarctation of the Aorta
13:36: Partial Anomolous Venous Retrun
14:14: Patent Forame Ovale
16:51: Fontan
27:57: Pregnancy in women with ACHD-Adult Congenital Heart Association
32:54 Exercise
Adult Congenital Heart Association
American College of Cardiology
37:08: Dr. Anushree Agarwal
37:39: 3D Printing in CHD
39:21: Adult Congenital Heart Association https://www.achaheart.org/
39:51: Empower My Congenital Heart
40:51: Johns Hopkins pted.org
44:16: Ebstein Anomaly
44:20: Transposition of the Great Arteries
Produced by: Nadja Wlasiuk, DNP, APRN, FNP-BC
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